Continuing to Spread Awareness: FARE Highlights A Milestone in Our Journey With Food Allergies

Mothernova FARE walk siteI’m honored to share that Food Allergy Research & Education has included writing from an article I wrote–What My Son Taught Me About Food Allergy Awareness: Think “A-E-I-O-U”–in its latest newsletter!

You can find our story on page 8 of Food Allergy News.

After learning an invaluable lesson at FARE’s walk to “say FAREwell” to food allergies last fall, I started thinking about food allergy awareness in terms of A-E-I-O-U: Awareness, Education, Inclusion, Outreach and Understanding.

Each value is so important and relies on the others to achieve our three primary goals: the safety, health and happiness of our children.

It’s so important to remember to foster food allergy awareness not just in others, but also in our children. 

A Heartfelt Thank You to FARE

FARE’s recognition means so much to my family. Not only did FARE organize such an amazing event to put us all one step closer to finding a cure for allergies, but they reached out to share our story.

The walk was an impactful day for so many reasons. It was a huge milestone in my family’s journey of managing food allergies. It was a very important day that we will always remember.

FARE is hosting 66 walks this year across the country. As FARE CEO John L. Lehr says in the newsletter, “There are 15 million people in the U.S. living with food allergies—that’s 15 million reasons to find a cure….”

Of course, I encourage everyone to participate. We are so glad we did and will again and again for years to come.

I truly believe that every time one of us advocates for change, it helps everyone. 

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Food Allergy Research & Education (FARE) is a nonprofit organization that provides advocacy and education on behalf of individuals with food allergies. I wrote a series of special reports on FARE’s 2013 annual conference. For more information about FARE, please visit their website at http://www.foodallergy.org/.

How do you work to ensure your child feels included? What are your experiences with the “A-E-I-O-U” pillars? Please share your stories so we can learn from you and continue to spread awareness!

 

 

 

2 Responses to “Continuing to Spread Awareness: FARE Highlights A Milestone in Our Journey With Food Allergies”
  1. my journey with allergy

    We do not have a nurse at all. Elementary school in Hawaii. The health aide is only cpr certified, and because she is hired by the department of education and not by the department of health, no one regulates her certification be up to date or expanded to include first aide and anaphylaxis. 504s are a struggle each year, as they refuse to allow the staff to be red cross certified to us the epi, they just have a public health nurse show them how. She’s not a certified instructor, and is still clueless as to the updates made in 2010 regarding the possibility of two injections. I even offered to pay for the school staff to become certified and they refused. My son has to carry his own epi becasue they still believe they can only administer one dose, despite our doctor and advocates attempts to teach them otherwise.

    • Alison Johansen

      We are beginning our journey with elementary school too. It’s such a stressful process, isn’t it. Hang in there, mama. Keep advocating for your son’s rights so you can pave the way for him and all of the kids at your school. Keep educating, informing and reaching out. We are here for each other!